Hello everyone, I'd like to take a moment to explain why I chose to run for Noah's Light Foundation.
"Every day in the United States, nearly a dozen children are diagnosed with brain and other central nervous system (CNS) tumors. These comprise the third most common type of childhood cancer, behind leukemia and lymphoma, and the deadliest form. Of the approximately 4,200 children diagnosed with these lethal tumors (of which approximately 2,000 are brain cancers) each year, fewer than 20 percent will survive. This is despite decades of research conducted at medical centers across the United States.Even those who do survive often face recurrence as well as serious long-term effects that can include cognitive deficits, neuropathy, hearing loss and other conditions stemming from both their disease and the impact of treatment on developing brains. Thus for many, survivorship can mean physical impairment, learning challenges and emotional trials. Clearly, there is a need for developing more effective, less toxic therapies that will increase the survival of children with brain cancer while also assuring them a higher quality of life."
"Providing renewed hope for children with brain cancer requires a new way of thinking. Unfortunately, pediatric cancer researchers have reached a point of diminishing returns using the current approach which relies on for-profit industrial concerns to develop and test new treatments. This is because biopharmaceutical companies, perceiving inadequate return on financial investments in research for so-called “orphan” diseases with small patient populations, have little incentive to investigate new therapies for pediatric brain tumors." Essentially what this means is that because this disease does not impact massive portions of the population, large for-profit pharmaceutical companies are not channeling funds into research and drug therapies for those suffering and struggling to cope with this disease.
Of all of the charities I could have chosen to support in this race, I really felt compelled to support Noah's Light. This area of pediatric oncology is not as well funded as it should be and it is certainly not given the attention it deserves considering how lethal it is for the afflicted. It is extremely disheartening to know that research in this area is being neglected because for-profit companies do not financially benefit enough from those suffering with this disease. Children should not have to die because the disease that they have is not profitable enough for industry to take an interest in. Children are always the future and even one unnecessary death is one too many. Please join in me in supporting Team Noah as we race to raise awareness. Thank you for your donations - anything you contribute helps and is greatly appreciated!
"Be the change you wish to see in the world."